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Parents & family

Family life with a child on the autism spectrum

Who is it for? For parents of children on the autism spectrum who shape family life.

In brief

For everyday life, the 2021 guideline named principles that can also help at home: structure and predictability, concrete and direct communication, maintaining physical distance and avoiding strong stimuli. [2, Rec. 3] Families should be informed in detail and involved in decisions; help should be coordinated by a single point. [2, Rec. 6] Families themselves need support. [2, Rec. 106] What fits in detail is different in every family; the examples below are suggestions from the editorial team.

This English translation was produced with AI assistance and has not yet been independently reviewed.

Status of the guideline: This article uses the S3 guideline on therapy (2021). It expired on 23.03.2026. [1] The statements are not automatically wrong, but they are not backed by a valid guideline.

Structure in everyday life

The guideline named structuring the environment and routines, for example through visual means, predictability and consistency of people. [2, Rec. 3] Practical examples (suggestion from the editorial team): fixed times for meals and sleep, a visible weekly plan, announcing transitions beforehand. Details: Routines, structure and predictability and Preparing well for changes and transitions. If things often get difficult at home: Challenging situations at home.

Coordinating and claiming help

The guideline recommended case management so that measures are coordinated and aligned by a single point, especially in childhood and adolescence, where several support systems are often involved. [2, Rec. 6] Families should be informed in an understandable way about treatment options, support and entitlements. [2, Rec. 6] Where that is missing, independent advice helps: Finding advice.

Relief and time

According to the guideline, parents should receive support that is based on their own needs. [2, Rec. 106] Care insurance benefits and further relief services: Relief for families. For yourself: Self-care for parents and relatives.

Keeping everyone in the family in view

Siblings should receive support and psychoeducation. [2, Rec. 106] More: Siblings of children with autism. The partnership also needs attention: Strain and the parents’ relationship.

What else you should know

  • There is no “right” way. The guideline named principles, not recipes. Ask professionals and other parents what helped them.
  • Not covered: concrete everyday techniques with proof of effectiveness. We have read no study on this.

Note: This article offers general information. It does not replace personal advice.

Sources and literature

  1. DGKJP. Aktuelle Leitlinien (Einträge 028-018 „Gültig bis 04.04.2021“ und 028-047 „Gültig bis 23.03.2026“). https://www.dgkjp.de/wissen/aktuelle-leitlinien/ – Professional society (website in German)
  2. DGKJP, DGPPN et al. Autismus-Spektrum-Störungen im Kindes-, Jugend- und Erwachsenenalter. Teil 2: Therapie. S3-Leitlinie, AWMF-Reg.-Nr. 028-047, Stand Text 02.05.2021. – Guideline (in German); expired on 23 March 2026

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